Resources

CA-IDD is dedicated to sharing information and resources with families, caregivers, and medical professionals caring for individuals with intellectual and developmental disabilities. We have created a list of organizations dedicated to enriching the lives of all individuals with learning disabilities. 

International Organizations

University of Hertfordshire (UH)-England: Understanding Intellectual Disability and Health

UH created a website to support education and learning resources for medical, nursing, and other healthcare students. The website providers readers with current and historical articles focused on individuals with intellectual and developmental disabilities. Topics range from prenatal diagnosis to mental health.

For more information, visit  website at https://www.intellectualdisability.info/intellectual-disability

Palliative Care for People with Learning Disabilities (PCPLD)

The PCPLD Network is a charity. It was created in 1998 to improve access for individuals with learning disabilities to the same services or receive the same quality of service as the rest of the population. PCPLD provides resources and educational platforms for families, caregivers, medical professionals, and individuals with IDD.

For more information, visit PCPLD website at https://www.pcpld.org/about-us/

National Organizations 

American Association on Intellectual and Developmental Disabilities (AAIDD)

AAIDD is dedicated to promoting progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. They work to enhance the skills, knowledge, rewards, and conditions of people currently working in the field of intellectual and developmental disabilities. AAIDD produces numerous journals focusing on research, policy, practices, and perspectives focused on individuals with disabilities.

For more information, visit AAIDD website at https://www.aaidd.org/about-aaidd

Consortium for Citizens with Disabilities (CCD)

CCD is a coalition of approximately 100 national disability organizations that working together toward national public policies that ensures the self determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.

CCD works on federal and state legislation and regulations affecting 54 million children and adults with disabilities by: ​

  • Educating members of Congress in an effort to improve public policies and programs that promote independence, productivity, integration and inclusion of people with disabilities. 

  • Identifying and researching public policy issues, developing testimony and policy recommendations and encouraging innovative solutions to public policy concerns. 

  • Encouraging people with disabilities and their families to advocate for themselves and coordinating grass roots efforts to support these advocacy efforts. 

For more information, visit the CCD website at http://www.c-c-d.org

Learning Disabilities Association of America (LDA)

LDA is a nonprofit committed to supporting people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources. Along with providing educational opportunities, LDA promotes legislative advocacy for laws to improve and preserve the rights of all individuals as well as individual advocacy.

For more information, visit the CCD website at https://ldaamerica.org

National Center for Learning Disabilities (NCLD)

NCLD is a non profit dedicated to improving the lives of the 1 in 5 children and adults nationwide with learning and attention issues—by empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. They support research, advocacy, and resources focused on individuals with learning disabilities. 

For more information, visit the NCLD website at https://www.ncld.org

Very Special Camps

Very Special Camps is dedicated exclusively to camps that serve individuals with one or more of a wide range of special needs. They provide a list of camps in the U.S. which provide services to children with IDD.  For more information, visit the Very Special Camps website at https://www.veryspecialcamps.com

California Organizations 

California Department of Education-Advisory Commission on Special Education (ACSE)

The Commission is a California advisory body required by Federal (20 USC 1412[a][21]) and State Statute (EC 33590-6). The ACSE provides recommendations and advice to the State Board of Education, the State Superintendent of Public Instruction, the Legislature, and the Governor in new or continuing areas of research, program development and evaluation in California special education.

For more information, visit ACSE website at https://www.cde.ca.gov/sp/se/as/acse.asp

California MAP to Inclusion & Belonging Making Access Possible

The CA MAP is dedicated to creating a statewide system of support, training and resources that gives all families and providers barrier-free access to inclusive child care. They provide links to multiple resources for individuals with any disability. 

For more information, visit California MAP website at https://cainclusion.org/camap/about-us/

Golden Gate Regional Center (RGCC)

GGRC is non profit organization committed to creating and nurturing an environment that values and promotes creativity, ingenuity, originality, and inspired thinking in developing new models of service and support, creating effective/efficient processes and procedures to best meet the needs of the IDD population. GGRC serves individuals and families in Marin, San Francisco and San Mateo counties. 

For more information, visit GGRC website at http://www.ggrc.org/home

Los Angeles Learning Disabilities Association (LALDA)

LALDA is a non profit organization committed to providing information and training to parents, adults with learning disabilities, teachers and other professionals who work with individuals with learning disabilities and the community in general.  LALDA serves individuals and families in LA County. 

For more information, visit LALDA website at https://lalda.org

Partners & Advocates for Remarkable Children & Adults (PARCA)

PARCA is a non-profit organization supporting intellectually and developmental disabled individuals in the San Mateo County of California. PARCA’s philosophy is that people with developmental disabilities have the right to live and receive services wherever they choose. PARCA is committed to empowering people of all ages with developmental disabilities to make choices and have control over every aspect of their lives and our programs are a direct result of this commitment. PARCA provides residential programs, support for those living independently, respite care, before- and after-school child care, and family support and advocacy services. 

For more information, visit PARCA website at https://parca.org/about-us/

Parents Helping Parents (PHP)

PHP is is a nonprofit organization that provides information, training, individual assistance, and resources to families, caregivers and professionals caring for individuals with learning disabilities. They provide educational classes ranging from early childhood learning to assistive technology.

For more information, visit PHP website at https://www.php.com